Electric Bike Technologies Donates Liberty Trikes to Children With SMA

To assist kids with spinal muscular atrophy (SMA) acquire mobility and independence, Electric Bike Technologies (EBT) is donating 10 Liberty Trikes — and plans to double that reward subsequent yr.

The Liberty Trike is a folding and active-mobility tricycle that can be utilized by kids with SMA and comparable bodily challenges.

The electrical tricycle provides a variety of unbiased mobility that may appear elusive within the conventional medical mobility system area, the corporate mentioned. The 750-watt Liberty Trikes have a prime pace of 12 miles per hour and a variety of eight to twenty miles. They’re touted by Forbes as a “hipper mobility scooter” that significantly assist people with restricted mobility.

“Children with SMA deserve a greater mobility possibility,” Jason Kraft, CEO of Electrical Bike Applied sciences, mentioned in a press release. “And their mother and father, that give all the things to make their kids’s lives higher, might use a bit assist.”

SMA is a neurodegenerative illness characterised by muscle weakness that results in atrophy. As SMA progresses, motion turns into slower, and sufferers can lose the flexibility to regulate voluntary motion.

EBT’s determination to donate was sparked by an e-mail to the corporate final yr from Kimberly Heinrich, whose 11-year-old daughter, Allison, has SMA. Heinrich was looking for recommendation on what trike would possibly assist Allison get exercise and take part in household bike rides.

In that e mail, “Kim mentioned, ‘She must ‘use it’ or she’ll lose it… it’s the motto of those youngsters attempting to keep up mobility and freedom in opposition to a merciless illness. This isn’t simply train however social fairness, that she issues simply as a lot as her brothers and different friends.’”

Heinrich’s e mail concluded: “I’ll do all the things I can to assist make it occur for her.”

Every week after the correspondence, in response to Kraft, Heinrich and her daughter had been in EBT’s warehouse close to Philadelphia so Allison might take a check experience.

“I’ve by no means seen anybody take to any of our electrical trikes the way in which Allison took to the Liberty Trike,” Kraft mentioned. “I used to be moved by Allison however one thing hit me like a ton of bricks that day. I’ve three youngsters near Allison’s age and it was crystal clear that Kim would sacrifice something to enhance Allison’s high quality of life. At that second, I knew we weren’t solely going to assist Allison, however we had been going to assist Kim too.”

EBT has enlisted Heinrich to assist decide this yr’s Liberty Trike recipients. She’s chosen 4 households thus far, in response to Heinrich, and likewise has agreed to assist with subsequent yr’s donations.

The Liberty Trike is bought instantly by the corporate at a price of $1,498, in response to EBT’s web site.

SMA impacts as many as 10,000 to 25,000 kids and adults within the U.S., in response to the SMA Basis.

Mary M. Chapman started her skilled profession at United Press Worldwide, operating each print and broadcast desks. She then grew to become a Michigan correspondent for what’s now Bloomberg BNA, the place she primarily coated the automotive business plus authorized, tax and regulatory points. A member of the Automotive Press Affiliation and one in every of a comparatively small variety of girls on the automotive beat, Chapman has mentioned the automotive business a number of instances of Nationwide Public Radio, and in 2014 was chosen as an honorary choose on the prestigious Cobble Seashore Concours d’Class. She has written for quite a few nationwide retailers together with Time, Folks, Al-Jazeera America, Fortune, Day by day Beast, MSN.com, Newsweek, The Detroit Information and Detroit Free Press. The winner of the Society of Skilled Journalists award for excellent reporting, Chapman has had dozens of articles in The New York Occasions, together with two on the coveted entrance web page. She has accomplished a manuscript about centenarian automotive fanatic Margaret Dunning, titled “Belle of the Concours.”

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Ana holds a PhD in Immunology from the College of Lisbon and labored as a postdoctoral researcher at Instituto de Medicina Molecular (iMM) in Lisbon, Portugal. She graduated with a BSc in Genetics from the College of Newcastle and acquired a Masters in Biomolecular Archaeology from the College of Manchester, England. After leaving the lab to pursue a profession in Science Communication, she served because the Director of Science Communication at iMM.